Skip to main content

When I needed him most, and still do

There are moments in life when you don’t just want support—you need it. Not the kind that shows up for a photo op or checks a box, but the kind that stays. That holds your hand through the fear, the pain, the unknown. I had one of those moments—a hospital stay that left me physically fragile and emotionally raw. And while I was surrounded by machines and medical staff, the person I thought would be my anchor was already drifting.

He was there to drop me off. He sat for a few hours. And then he left—waiting for me to be well enough to come home, not because he missed me, but because he needed to get back to work. 

December 23rd. I remember the cold air on my face as I wheeled myself through our front door, still weak, still healing, still unsure how I’d make it through the next hour—let alone the next chapter. I had just spent two months in the hospital, recovering from the consequences of self-medicating through drinking. I was wheelchair-bound, using a slide board to move from bed to couch to toilet. I couldn’t walk. I could barely lift myself. But the hardest part wasn’t physical.

It was the silence. The absence. The expectation that I would care for our children and myself, as if nothing had changed. Hoping for comfort, I was met with coldness. Criticism. Distance.

And in that moment, I realized something I hadn’t wanted to admit:

When I needed him most, and still do… he wasn’t there.

It’s been almost three years. Three years sober. Three years of battling excruciating pain every single day. And yet—I smile. I live like a pretty normal person. At least, that’s what it looks like from the outside.

Since my last long hospital stay, doctors have uncovered a laundry list of chronic health conditions. Autoimmune disorders like anemia, rheumatoid arthritis, and possibly lupus or MS. But thanks to the insurance company dragging its feet, I’m still waiting on the tests that could give me a proper diagnosis.

Here’s what I do know: I taught myself how to walk again. I pulled myself out of the wreckage. I’m working. I’m independent. I did it mostly alone.

No support. No cheerleading. Not from my husband. Not from anyone.

He doesn’t acknowledge my health issues. Thinks they’re made up or “not that serious.” I’ve begged him—begged—to just Google what I’m going through. To try and understand. But he won’t. The financial stress of my medications? That’s all on me. And I’m still expected to contribute equally to our household.

Every appointment, I go alone. Surgeries? He picks me up after work. ER visits? He drops me off, asks how long it’ll take, and goes home. I sit there alone, facing every twist and turn by myself. No family here. Few friends. Just me.

And when I get home? No matter what shape I’m in, I’m expected to pick up right where I left off. Cook. Clean. Bathe the kids. Do the laundry. No help from him. No help from the kids. Just mom.

Some days I cry through the pain. Not often. But lately, the tears are turning into anger. Outbursts. Because I’m tired. Really tired. And I feel so damn unappreciated.

Oh, and here’s the kicker: my husband told me I’m not allowed to feel like I deserve anything. That being proud of myself makes me look bad. That I think too highly of myself.

There’s so much more I could say, but the brain fog is creeping in. Still, I keep thinking about the question my doctor always asks when I show up alone:

“Where is your husband and support today?”

And I never know how to answer. Because the truth is—I don’t have any. But I’m still here. Still sober. Still fighting

I’m not writing this to point fingers. I’m writing it because silence has a weight, and I’ve carried it long enough. I’m learning that healing isn’t just about medicine or rest—it’s about feeling safe, supported, and loved. And when the person who promised to be there through sickness and health disappears when the sickness shows up, it leaves a scar deeper than any diagnosis. I’m speaking now, because I still need support. I still need care. And I deserve to be met with presence, not absence.

Comments

Popular posts from this blog

Grieving who I once was before RA took a claim on my life

 In the whirlwind of my early motherhood years, I was unstoppable. Picture this: a hardworking mom clocking 40+ hours a week, juggling the chaos of raising kids, running errands, and squeezing in time to be there for my mom. Somehow, amid the frenzy, I found pockets of joy—those stolen moments after school at the park, the laughter and bonding over shared adventures. Then, as the sun dipped below the horizon, I’d return home, roll up my sleeves, and create a meal that brought smiles and warmth to everyone’s faces. And it didn’t stop there. Hosting dinners was my ritual—a chance to connect, to laugh over good food, and to revel in meaningful conversation (even if my husband wasn't a real people person I still did it haha). I thrived in the hustle, pulling off miracles I never even thought possible. Life had rhythm, energy, and purpose. I didn’t just live—I thrived.  But Rheumatoid Arthritis has a way of rewriting the story. It’s not an immediate, earth-shattering rewrite—it’s s...

The Last Kick : Losing Ellie, and the Day Everything Shifted

  🏈 It Started With Football and Fried Rice It was the Packers vs. Bears, always a heavy-hitter here in the Northwoods. I was with my then boyfriend, his mom and aunt at a local tavern—surrounded by beer, wings, laughter, and the usual rivalry chaos. I was still a “sprinkled” Bears fan back then, raised that way by my mama. Spoiler alert: I’m now a reformed Packers fan. (That game may have had something to do with it—last time the Bears beat the Packers, and yeah, Urlacher was still their quarterback. Whoa... look at me reminiscing like I own a jersey collection.) Ask me about today’s football, though, and I’m just a schoolgirl crushing on a second-string red-headed quarterback. Maybe one day word will get out he made it into my blog. 😉 👣 Something Was Off—But I Didn’t Know What After the game, we loaded up the four-wheelers and headed to the farm to wind down for the night. I noticed baby girl—Ellie—was unusually quiet. A few wiggles here and there, but not the usual excit...

Picking Up The Pieces When A Step Parent Steps Away

  This past year has carved its way through me in ways I didn’t see coming. As our children have grown—especially the older two, who are mine from before—something shifted in him. I can’t pinpoint the exact moment, but it started with irritation. Little things. A tone. Then it hardened into something colder: anger, blame, disconnection. He gave up. He won’t even try with them anymore. There’s no warmth left in his voice when he speaks to them—if he speaks at all. Just frustration. Just absence. But it isn’t only them now. Even with the babies we share, I see it: the snapping, the yelling, the message that crying is weakness and emotions need punishment. “One parent has to be stern,” he says. And somehow, that now means him—loud, sharp, and always on edge. So I’ve become the calm one. The soft place. The keeper of peace. But inside? I’m unraveling I guess the part that really stings is that I didn’t find this out in a blow-up or a confession or even a text message. I found it t...